Sunday, September 07, 2008

Using my DQ title for good, not evil...

Geez - I am getting bored with being a drama queen (despite being so darned good at it) so will interrupt for a very important community service...



One story bubbling around the blogworld at the moment is the rally behind Tiff and her most beautiful daughter Ivy at My Three Ring Circus.

Tiff is a most beautiful mother whose child Ivy suffers from words too long for me to remember - in laymen terms she is home until her system gets another inkling of danger, she gets screwed around by the "should she, shouldn't she" debate by health officials and when she finally gets admitted (a million miles from home) horribly sick and treated with huge white man medicine (and varying bedside manners) she improves enough to go home to enjoy a little more time with siblings before the cycle continues.

Tiff has other children. She even has a child who suffered similarly in her infancy - who was treated with something called IVIG (don't quote me) and is now a pre-teen with attitude.

Ivy has been denied this treatment. We don't have the definitive big doctor terms for this, but obviously there should be either a BLOODY GOOD REASON for Tiff and Ivy and the whole family to go through this crap or the right person look at this case and give the double thumbs up.

Read the beginning at Someday We Will Sleep and consider signing the petition. Apparently over 600 have done so already. And apparently people who do have influence are taking notice.

I don't know if any one individual signature can cause change, but enough notice and the right people might get advised of the noise out here in the blog world and take another look at Ivy's file and made a decision about her future treatment that makes life more enjoyable for her and her family - or at least give a really good reason why they should keep going through such crap.

Here is the petition.

3 comments:

Veronica said...

Thankyou so very much!

tiff said...

OMG, Jeanie!
Thank you to you for this! This has been so wonderful for us. To know that there are good people out there who are willing to do something for us is just mind blowing. So thank you from the bottom of my heart.

Mama Zen said...

Checking it out!